If it’s 6 am on a Thursday, it must be the Fast Track blood lab at MD Anderson.  Unfortunately, my platelet count today has not really changed.  It’s only 14 (normal is 140 to 440). My transplanted immune system is still having trouble telling friend from foe and is still killing off my platelets as quickly as my bone marrow can produce them.

Poor Mary Pat.   I’m really running her through a healthcare gauntlet.  We were on our way to Naples and a low-stress lifestyle and now we are living out of a hotel and spending our days at MD Anderson.   She is really taking those “for better or worse, in sickness and in health” vows pretty seriously.  She has kicked my butt these past two weeks to keep me as active as possible.  She’s forced me to get up and walk an average about 5 to 7 miles a day.  That’s pretty important since my docs have me on really high-dose steroids that can trigger diabetes.

I used to pride myself in never taking medications.  Now I find myself swallowing 29 pills and capsules a day.  Ugh!

Immune thrombocytopenic purpura (ITP) is not a poor man’s condition.  My Noxafil tablets cost over $9,000 per month and the eltombopag (Promacta) I got today costs over $14,000 per month.

It will take at least one to two weeks to see if the Promacta can increase my production of platelets and get me up to the levels needed to travel.  In the meantime, the battle continues.   Onward and upward my friends.

 

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